Friday Update

Thanks to my sister for updating the blog last night. You've probably gathered that writing to process through this experience has been pretty cathartic to me. Yesterday I wrote, but not here. Instead, I wrote a letter to Finn. And I wrote a letter to my parents. And I wrote out some of my favorite words to really focus on as we hunkered down for another night in the PICU.

Sometime yesterday, just when I thought things couldn't get worse, they did. Our hearts were heavy. Morale was low. We were sad, scared, and tired. Our boy was fighting so hard, feeling so sick. My heart longed for time that Kyle and I could just be with each other and find strength in our love.

These words have carried us through the last few hours. Please join us in reciting these words. Add them to your prayers. Blast them on the radio. Enjoy them.

"Seems to me that God above created you for me to love
He picked you out from all the rest because he knew I'd love you best."
from the lullaby I See the Moon.

"Tell me everything will be okay if I just stay on my knees and keep praying.
Believing in something.
Tell me everything is taken care of by those qualified to take care of it all."
from Dive In by Dave Matthews Band

I've got pretty strong "anchors" to both of those songs, and the lyrics have provided me comfort and peace for many years.

Today's positives:
1. Acorn squah stuffed with wild rice and pecans for dinner (from the hospital cafeteria).
2. Kyle's exclamation, after he finished his dinner, "those brussel sprouts were actually really good."
3. A beautiful box of fruits and nuts arrived today. I've already devoured the greek yogurt covered almonds.
4. The Marines. Specifically, the Marines of Kyle's office. We needed helped with some logistics tomorrow, and within hours the Marines had a plan. We are so grateful for the command support that we've received during this time.
5. Smart Start basketball. Everett's at basketball tonight with some of his best people. I know he's having a great time, getting some of his "big feelings" out through gross motor activity, and enjoying the normalcy of Friday night.
6. Kyle and I found a lot of time to be with each other over the last 24 hours. Last night we sat together breathing and praying. We even spooned. In a recliner. In the PICU. I can't wait until Finn reads this someday and gets grossed out by that post. I can just hear him and Everett saying, "Eeeeewwwwww Mom!"