Today, as I spoke with one of my aunties, I realized that people (lots and lots of people) might really appreciate a brief update about our little warrior. Finn has had an amazing month. He's been out of the hospital and home for 4.5 weeks. We have weekly follow up appointments with his pediatrician, and we've seen a few specialists.
Overall, Finn is doing great. He's steadily gaining weight, and his respiratory health has been described as "perfect" and "pristine" the last few weeks. So, now, most of our energy is focused on "regular baby stuff" like teething, and reflux, and encouraging a breastfed baby to take a bottle. I can't remember the last time I texted one our pediatric nurse neighbors to "come take a listen" to Finn's lungs . . . Okay, actually, I can remember . . . it was approximately two weeks ago!
At this point the Pediatrician's primary concern is Finn's weight gain, and his well baby milestones. Fortunately he did not have any developmental delays for his two month milestones, and he appears to be on track for his four month milestones. His weight gain is slow and steady. He's still eating on demand, and he hasn't quite settled in to much of an eating or sleeping schedule. It's a good thing we have a Starbucks around the corner! I'm running on caffeine most days!
Of course there is still hand sanitizer on every level of our home. We wash our hands A LOT! It took a couple of weeks before I was comfortable having any guests (especially little people) inside the four walls of our home.
Each day, I feel grateful for the "new normal" that our family is working to create. Each and every day I feel grateful for the outpouring of love and support we felt (and continue to feel) from our friends and family around the globe.
I am forever changed by the experience of having a child in the PICU. Someday I will find a way to say "thank you" to each and every person who helped us through this journey. In the meantime, I can assure you that Love Wins!
Now, I'm back to the play room to watch Everett play his favorite game while Finn practices rolling over!
#FinnStrong
#LoveWins
I've been thinking about Finn...So happy to hear you all are doing well!
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